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Privacy Policy Statement

DESSH.org respects your privacy. We protect your personal information and adhere to the highest standards in gathering, using, and safeguarding constituent information, including all donor personal and gift information. DESSH.org does not rent, sell, or trade our mailing lists. Any information you provide – such as name, physical address, phone number, or email address – will be used only to deliver services and to keep you informed and up to date on activities, including programs, services, special events, funding needs, opportunities to volunteer, or legislative alerts. DESSH.org does not knowingly solicit information or contributions from minors under the age of 18 without the consent of a parent or guardian, and we request that anyone with knowledge of information or contributions from a minor immediately advise us. If at any time you wish to receive less information via mail or online, or wish to be removed from any or all of our communications, or have any concerns with this policy or any information provided or obtained by DESSH.org simply contact us.

Indirect Cost Policy Statement

The DESSH Foundation does not provide funding for indirect costs or overhead expenses associated with research grants. All awarded funds must be used solely for direct research-related costs.

THE DESSH FOUNDATION

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info@dessh.org       3 Higgins Drive   |  Vernon, NJ 07462

DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.

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