THE DESSH FOUNDATION
Committed to Curing DeSanto-Shinawi Syndrome
WHO WE ARE AND WHAT WE DO
DeSanto-Shinawi Syndrome is a newly discovered genetic disorder characterized by developmental delay, hypotonia, behavioral problems, intellectual disability, feeding difficulty, and seizures.
The DeSanto Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH.