THE DESSH FOUNDATION
Committed to Curing DeSanto-Shinawi Syndrome
WHO WE ARE AND WHAT WE DO
DeSanto-Shinawi Syndrome is a newly discovered genetic disorder characterized by developmental delay, hypotonia, behavioral problems, intellectual disability, feeding difficulty, and seizures.
The DeSanto Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH.
If you or a family member has been diagnosed with DESSH, let us know! By joining this registry you will receive information and communications dedicated to patients and families living with DESSH, including information about future DESSH clinics. The more we grow, the closer we are to realizing our mission.
COME WORK WITH US
Volunteer Your Time and Talent